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8.12.2009

George and I finally had our baby! Her name is Piper Marie Amezcua born on 8/5/2009 @ 19:19 – 7.14 lbs and 20” long. She is healthy, but she has a structural issue with her mouth and she has been in NICU. I was discharged from the hospital Saturday August 8th without our baby. We have been visiting her there everyday since.

Piper has a bilateral cleft palate which is completely structural inside of her mouth. She looks completely normal when you see her face.” Cleft palate is a treatable birth defect in which the baby's roof of the mouth (palate) does not develop normally during pregnancy, leaving an opening (cleft) that may go through to the nasal cavity.” She also has a sequence called Pierre Robin where she has a very small lower jaw, a tongue that tends to fall back and downward, and a soft cleft palate. This issue caused Piper to not effectively eat from the breast or bottle. We had her in the hospital for 14 hours before she was admitted to NICU. We spoke with the neonatologist and we are working on feeding her with a special bottle. Currently she is eating 30 cc’s out of a bottle and tube feeding the rest. She is having a total of 60cc’s per feeding every three hours. Currently she is gaining weight well, very healthy and getting a stronger suck everyday. She passed her hearing test, vision test, and her echocardiogram. We are still waiting on a chromosome test called FISH. As of Sunday August 9th the doctor said that she would be in NICU for 7 to 10 days.

Piper was due on August 1st. I was not set on that date but time was ticking and I was not feeling so great. I went to my prenatal check up with my doctor on the 5th and had been battleing blood pressure issues. Well, things were getting severe and I had (PIH) pregnancy induced hypertension aka preeclampsia aka toxiema. “Pregnancy induced hypertension (PIH) is a condition of high blood pressure during pregnancy. Your blood pressure goes up, you retain water, and protein is found in your urine. It is also called toxemia or preeclampsia. The exact cause of PIH is unknown. ). Preeclampsia affects the placenta, and it can affect the mother's kidney, liver, and brain. When preeclampsia causes seizures, the condition is known as eclampsia-the second leading cause of maternal death in the U.S. Preeclampsia is also a leading cause of fetal complications, which include low birth weight, premature birth, and stillbirth.” My doctor immedietly wanted to admit me to the hospital and deliver the baby. I told him that I wanted to go home first and think about it. I tried to read up on the issue a bit and nap, but I knew that continuing the pregnancy would be too dangerous for me and the baby expecially since my symptopms were getting severe. I opted for the cesearan because I was not dialated, effaced or dropped and with my condition I don’t think that by body could have handled labor. Well, there I was on the operating table and the baby was under stress. She had mechonium (first bowel movement in womb) and she had the cord wrapped around her neck twice. It was a good thing that I did not have a vaginal delivery or that would have created even more problems.

This was so unexpected for all of us, especially me. Dealing with this has been hard but we are doing everything for our daughter to get her home. We have support from our families and a few friends right now. Oddly enough we don’t need anything except more time in the day and some space ;) George has a full mailbox on his cell phone and I am not picking up phone calls too often. We will update everyone as soon as she comes home. We could use prayers. It is super hard not brining your own baby home and practically living at the hospital each day. We are embraching our situation because we know things could be worse but it doesn’t make it any easier. – Katie, George and Piper

piper being born

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